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PF Warriors

PF Warriors Newsletter – April 2025

April 23, 2025 by PF Warriors

PF Warrior Newsletter April 2025

Bringing ATS to You:Follow PF Warriors for Exclusive Insights PF Warriors is excited to attend the annual American Thoracic Society (ATS) International Conference, one of the largest educational meetings for [Read More]

Filed Under: News

Oxygen Is Not Optional: Help pass the Supplemental Oxygen Access Reform (SOAR) Act

April 16, 2025 by PF Warriors

Spring time Washington DC, Capitol building USA.

We are pleased to share that the Supplemental Oxygen Access Reform (SOAR) Act of 2025 has reached both chambers of Congress. Senate Bill S.1406 and House Bill H.R. 2902 are [Read More]

Filed Under: News

Letter to Congress re SOAR Act Cosponsorship

April 15, 2025 by PF Warriors

SOAR Act Coalition 2025

April 15, 2025 Dear Senator/Representative: We are writing as a group of more than 30 patient, healthcare professional, and industry organizations to request that you cosponsor bipartisan legislation S.1406/H.R. 2902, [Read More]

Filed Under: Press Release

Walking for Breath: Craig’s 32-Mile Challenge to Stop IPF

March 26, 2025 by PF Warriors

Craig and his kids 6 months post transplant

Life has a way of changing course when we least expect it. For Craig, his journey began in late 2022 with a routine health check—one that would unexpectedly reveal scarring [Read More]

Filed Under: News

Health Organizations Join Forces on Rare Disease Day for Idiopathic Pulmonary Fibrosis

February 28, 2025 by PF Warriors

Rare Disease Day 2025

The American College of Chest Physicians, the PF Warriors, the Rare Disease Diversity Coalition/Black Women’s Health Imperative, and the National Association of Community Health Workers are proposing to address IPF [Read More]

Filed Under: Press Release

Navigating Life After a Transplant—and the Unexpected Risk of Cancer

February 3, 2025 by PF Warriors

Portrait of Pete M. wearing a cowboy hat and smiling while wearing a t-shirt that says "powered by donated parts."

At PF Warriors, we know that life with pulmonary fibrosis is a journey filled with unexpected challenges. For many, a lung transplant brings a second chance at life—but it also [Read More]

Filed Under: Lung Transplant

Gift Ideas for People Living with Pulmonary Fibrosis 2024

December 5, 2024 by PF Warriors

The holiday season is in full swing! This season is for loved ones, tradition, food, and celebration. Throughout the world, many of us turn to gift-giving to show our love [Read More]

Filed Under: Caregiving

Spotlight on Interstitial Lung Disease Diagnosis and Treatment on ILD Day, Sept. 18

September 17, 2024 by PF Warriors

Ild Day. Interstitial Lung Disease Awareness and Education.

Nine leading patient organizations are uniting to present the fourth annual ILD Day on Wednesday, Sept. 18, to raise awareness and understanding of interstitial lung disease (ILD) and pulmonary fibrosis [Read More]

Filed Under: Press Release

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