Patient Guide

The Patient Guide to Living with Pulmonary Fibrosis was written by our members. This guide is 30 pages of practical information from people just like you. The topics include diagnosis, medications, avoiding irritants, nutrition, supplemental oxygen, travel and other tips. The guide helps you plan to live your best life with Pulmonary Fibrosis/ILD. 

Please read or download a copy. We recommend that you refer to it again and again as your need change. Pulmonary fibrosis can be progressive, so what may not apply to you now, could be important later on.

Please remember that this guide is not intended to be medical advice. We have done our best to research and include accurate information. But, we caution you to always talk with your healthcare team or pulmonologist when making a medical decision. Every one of us is unique because of the many types of interstitial lung diseases, accompanying conditions, and our place in the patient journey.

Caregiver Guide

Here are some additional resources for you to check out if you want more specific informaiton.