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Patient Guide

Patient Guide

The Patient Guide to Living with Pulmonary Fibrosis was written by our members. This guide is 30 pages of practical information from people just like you. The topics include diagnosis, medications, avoiding irritants, nutrition, supplemental oxygen, travel and other tips. The guide helps you plan to live your best life with Pulmonary Fibrosis/ILD. 

Please read or download a copy. We recommend that you refer to it again and again as your need change. Pulmonary fibrosis can be progressive, so what may not apply to you now, could be important later on.

Please remember that this guide is not intended to be medical advice. We have done our best to research and include accurate information. But, we caution you to always talk with your healthcare team or pulmonologist when making a medical decision. Every one of us is unique because of the many types of interstitial lung diseases, accompanying conditions, and our place in the patient journey.

Patient Guide to Living with Pulmonary Fibrosis

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View English Guide
View Spanish Guide

Caregiver Guide

Caregiver Guide to Living with Pulmonary Fibrosis


Cover of the Caregivers Guide
View English Guide

Here are some additional resources for you to check out if you want more specific informaiton.

YouTube video
Living with Shortness of Breath
Meeting calendar
View our meeting calendar
Man resting in bed.
Newly Diagnosed
tips for the newly diagnosed
Couple exercising at home.
Living with Pulmonary Fibrosis
links
Woman and her adult child enjoying time together.
Caring for someone with Pulmonary Fibrosis
caregiver links
Woman working out on a treadmil

Pulmonary Wellness Bootcamp

Dr. Noah Greenspan’s Bootcamp is a six-week online Pulmonary Rehabilitation Program. It is ideal for anyone with respiratory disease such as PF or ILD. Free.

Register for Bootcamp

Qi Gong for Pulmonary Health

The Rehabilitative Qigong for Pulmonary Health program blends ancient self-healing practices with modern rehabilitation to help you breathe deeply, live longer, and find greater meaning in life. The 15-module training is free.

Register for Qigong

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