Talking to family and friends about your fibrotic lung disease can be frustrating. Pulmonary fibrosis and interstitial lung disease are rare and are not well-publicized, so many people have never heard of it. What do you tell your friends and family about your health? Here are a few things I’ve learned about how to talk [Read More]
Holiday Gift Ideas for People with Pulmonary Fibrosis
We’ve got ideas for thoughtful gifts for friends or family members who are living with a fibrotic lung disease. The importance of the gift is the consideration and love you put into selecting it. Here are a few ideas for gifts or for yourself. Herbal Teas and Honey A warm cup of tea soothes a [Read More]
5 Secrets from Patients Living with Pulmonary Fibrosis
I became a caregiver for my partner when she was diagnosed with non-specific interstitial pneumonia in 2014. She had a nagging cough which had persisted through November and December into January and February. Finally, we agreed: this was not a normal flu or cold cough. When she came home with the diagnosis, all I knew [Read More]
7 Tips to Help Manage OFEV® Gastrointestinal Side Effects
OFEV® is a promising drug for many people with interstitial lung disease. Clinical research shows it can slow the progression of the disease in some patients. But OFEV comes with a possibly formidable side effect: gastrointestinal distress. The most common side effect is diarrhea. Fewer people experience nausea, vomiting, or stomach pain but they are [Read More]