As a member of PF Warriors, you have access to all our resources and support. If you have been diagnosed with a lung disease that causes fibrosis, there are things you can do to make your life better. If you are the spouse, adult child, or friend of a patient, you may want to understand and to help. We hope the resources we provide are meaningful to you.
Resources for Patients and Families
Living with PF-ILD: Guide
Living with PF ILD, A Patient and Caregiver Information and Resource Guide was written by our members. This guide is 30 pages of practical information from people just like you.
The guide covers topics of interest to patients and caregivers. The topics include diagnosis, medications, avoiding irritants, nutrition, supplemental oxygen, travel and other tips. The guide help you plan to live your best life with Pulmonary Fibrosis/ILD.
Available in English and Spanish.
Members only Facebook group
You are not alone. While interstitial lung diseases that cause pulmonary fibrosis are rare, many people are living with the same challenges as you are. The PF Warriors private Facebook group is where you can read messages and ask questions of others with PF/ILD. PF Warriors share everything from their problems to their successes in the group.
Library of Videos
We have a large set of video recordings you may choose from at any time. We hope they help you better understand what PF is. More importantly, the videos focus on living your best life after diagnosis.
Many of the videos feature the latest information about COVID-19 for those with PF/ILD.
Pulmonary Wellness Bootcamp
Dr. Noah Greenspan’s bootcamp is a six-week online Pulmonary Rehabilitation Program. It is ideas for anyone with a respiratory disease such as PF or ILD.
The bootcamp is offered at no charge to PF Warrior members.
Qigong for Pulmonary Health
The Rehabilitative Qigong for Pulmonary Health program blends ancient self-healing practices with modern rehabilitation to help you breathe deeply, live longer, and find greater meaning in life. The 15 module training is free for PF Warriors.