As a member of our family of PF Warriors, you have access to all our resources and support. We want to be your main provider of education. We publish news, articles and updates about PF and ILD. We also provide places where you can go to ask questions and hear from other members. We are Patients Helping Patients.
Living with PF-ILD: Guide
Living with PF ILD, A Patient and Caregiver Information and Resource Guide was written by our members. This guide is 30 pages of practical information from people just like you.
The guide covers topics of interest to patients and caregivers. The topics include diagnosis, medications, avoiding irritants, nutrition, supplemental oxygen, travel and other tips. The guide help you plan to live your best life with Pulmonary Fibrosis/ILD.
Members only Facebook group
You should not feel like you are alone. While PF/ILD are rare diseases, many people are living with the same challenges as you are. The PF Warriors private Facebook group is where you can read messages from others with PF/ILD. PF Warriors share everything from their problems to their successes in the group.
Are you looking for a place to ask questions of people like you? There is likely someone on the Facebook private group who has faced your situation before. Post your question anytime or search the past posts to find out what has been asked and answered.
Visit and request to join the PF Warrior private group at https://www.facebook.com/groups/pfwarriorrs/
Library of Videos
We have a large set of video recordings you may choose from at any time. We hope they help you better understand what PF is. More importantly, the videos focus on living your best life after diagnosis.
Many of the videos feature the latest information about COVID-19 for those with PF/ILD.
We have educational meetings from healthcare experts that focus on the lungs, best practices, medical insights and research advances. The collection includes videos from experts on nutrition and exercise.