Newly Diagnosed with Pulmonary Fibrosis
If you or a loved one have been diagnosed with a form of interstitial lung disease or told you have pulmonary fibrosis, you may still be reeling from the news. Your doctor may have explained your condition to you, but it is sometimes hard to grasp all the details. There are things you can do that will will help you get the best medical treatment available. Learn to live with the disease, not for the disease. The information on this page is just a beginning.
Causes and Diagnosis
Living with Pulmonary Fibrosis
- 5 Secrets from Patients Living with Pulmonary FibrosisI became a caregiver for my partner when she was diagnosed with non-specific interstitial pneumonia in 2014. She had a nagging cough which had persisted through November and December into January and February. Finally, we agreed: this was not a normal flu or cold cough. When she came home with the diagnosis, all I knew [Read More]
- 5 Tips for Talking to Family and Friends about Your HealthTalking to family and friends about your fibrotic lung disease can be frustrating. Pulmonary fibrosis and interstitial lung disease are rare and are not well-publicized, so many people have never heard of it. What do you tell your friends and family about your health? Here are a few things I’ve learned about how to talk [Read More]
- Newly Diagnosed with Pulmonary Fibrosis? Do These Things FirstLearning that you have a rare lung disease is shocking, confusing, and just plain frightening. Often, people with pulmonary fibrosis see their primary care physician because they are concerned about coughing or shortness of breath. Some learn of the condition as a result of a routine exam or other treatment. You never expect to hear [Read More]
- 7 Things to Know Before Starting Supplemental Oxygen for Pulmonary FibrosisMost people with pulmonary fibrosis will require supplemental oxygen, or oxygen therapy, at some point in their lifetime. If your condition is diagnosed very early, you may not require supplemental oxygen for some time. Some patients may require supplemental oxygen only while asleep or during exercise. Other patients may require extra oxygen nearly all the [Read More]
- 3 Most Important Numbers on a Lung Function Test for Pulmonary FibrosisDuring diagnosis of pulmonary fibrosis or interstitial lung disease, your doctor will administer a pulmonary function test (PFT). A pulmonary function test, also called a lung function test, is a set of tests that measure how well your lungs are working. Most common test is inhaling and exhaling The most common type of lung [Read More]
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We’ll send you an email welcoming you and pointing you to our free guide: Living with Pulmonary Fibrosis. Written by patients and reviewed by healthcare professionals, it is 30 pages of practical information you’re looking for. And you’ll receive email invitations to our monthly educational meetings.